Memories

****WARNING Some of these pictures will be scary to children so be WARNED. 

"The Way We Were"
 

Mem'ries,
Light the corners of my mind
Misty water-colored memories
Of the way we were
 

Ah, Barbra Streisand! For the past several nights this song has been entering my head every time I start to go to sleep and I just thank God for where we are now. Because truthfully it was really hard and really scary while we were in the hospital. 

UPCOMING EVENTS:

This Monday at 7pm (12/9/13) the Cub Scouts are doing a cake Auction for Ainsley. It's at the Westwood Elementary School and there was a story in the local NewsPress.

Here is the LINK: NewsPress Article

The Give Forward fund raiser ends in four days and even though we didn't hit our goal, we have been able to fund so many projects around the house and give the kids a Christmas they won't forget.

**UPDATE we got the GiveForward Fund Raising page to keep going so we will continue to use it, especially since the next 56 days will include multiple stays away from home. 

Here is the LINK: Give Forward Donations

We have used the funds for multiple travel expenses, learning resources, new duct work in the house, paying off debts, paying our bills, paying for gas, replacing old toys, a new bunk bed, food, and babysitting for George. We also had many items and time donated by so many different community members, family and friends that we are so very grateful for and humbled by the help.

We will continue to fund raise for future travel, medical things that aren't covered, food, bills, and time occupiers. In the future we plan on helping fund raise for more leukemia awareness and of course other options in care. 

We have the OSU O'Colly Newspaper doing a story on us and we revealed pictures that many people didn't see so I thought I would reveal them now. 

****WARNING Some of these pictures will be scary to children so be WARNED. 

These are for learning purposes and for other parents out there that have to go through this. (And for our history.) We actually showed Ainsley and George all of these and explained all the various details of what was going on in each picture. For those parents that have a pediatric ICU psychosis or Post Traumatic Stress syndrome happening with their child the thing that really helped Ainsley was going home, weaning off the high doses of drugs and the ketamine they gave her after a spinal tap. 

We still have two more 56 day rounds of intense chemo (starting on 12/17/13) and then we move to two years of MAINTENANCE chemo. This is a true marathon for our family.

Again, we cannot thank everyone enough for EVERYTHING! Prayers, yard work, money, toys, gas cards, gift cards, food, more prayers, and the overall support. 

 

-Andrea

Visiting Family in Indianapolis One Week before ER

Visiting Family in Indianapolis One Week before ER

Extremely large belly three days before ER and lethargic 

Extremely large belly three days before ER and lethargic 

Weird bruises on feet and hands showed up day before ER. Petechiae bruising

Weird bruises on feet and hands showed up day before ER. Petechiae bruising

Hand Petechiae hours before going to ER

Hand Petechiae hours before going to ER

The helicopter that took Ainsley to OU Childrens

The helicopter that took Ainsley to OU Childrens

When we arrived. They were braiding your hair. And we learned you may have Leukemia.

When we arrived. They were braiding your hair. And we learned you may have Leukemia.

Our beds for the evening.

Our beds for the evening.

Coffee after we found out leukemia was in the peripheral blood. 

Coffee after we found out leukemia was in the peripheral blood. 

Coffee 

Coffee 

We got to see George the next day. 

We got to see George the next day. 

George visit

George visit

Infections were rampant. We had to wear gowns and masks when in your room. 

Infections were rampant. We had to wear gowns and masks when in your room. 

IMG_1693.jpg
Your output was not matching the input and you started to puff up. 

Your output was not matching the input and you started to puff up. 

The place we discussed everything when we got the 100% leukemia diagnosis. 

The place we discussed everything when we got the 100% leukemia diagnosis. 

The outfit I brought when I thought we would be going home after a night. 

The outfit I brought when I thought we would be going home after a night. 

You were slowly getting more and more bloated due to all the drugs and liquids. 

You were slowly getting more and more bloated due to all the drugs and liquids. 

Your sweet hands were so stretched out and puffy. 

Your sweet hands were so stretched out and puffy. 

They started to worry about you being so puffy and we discussed dialysis. 

They started to worry about you being so puffy and we discussed dialysis. 

You were getting more rashes and bruising. 

You were getting more rashes and bruising. 

The first dialysis machine

The first dialysis machine

They installed two lines in your neck for the dialysis to run. 

They installed two lines in your neck for the dialysis to run. 

Your skin starting to tear from being so swollen.

Your skin starting to tear from being so swollen.

You got orthopedic booties to sleep in so your hips, legs and feet wouldn't be damaged. 

You got orthopedic booties to sleep in so your hips, legs and feet wouldn't be damaged. 

Dialysis was working and you were looking so much better. 

Dialysis was working and you were looking so much better. 

Mommy milk for George, even though he didn't drink it. I donated it to a new mom. 

Mommy milk for George, even though he didn't drink it. I donated it to a new mom. 

Your very first round of CHEMO. 

Your very first round of CHEMO. 

A feeding tube was added so you could start to get more nutrients. 

A feeding tube was added so you could start to get more nutrients. 

Your Induction Roadmap.

Your Induction Roadmap.

Cultures on your lines to make sure they are still good. 

Cultures on your lines to make sure they are still good. 

My sweet babe. 

My sweet babe. 

Daddy gets a bike ride in. 

Daddy gets a bike ride in. 

New dialysis machine works 100 times faster. 

New dialysis machine works 100 times faster. 

Finally we get to see your sweet eyes again. 

Finally we get to see your sweet eyes again. 

You wake up but we stay in the PICU until 8/23

You wake up but we stay in the PICU until 8/23

An ultrasound of your appendix. 

An ultrasound of your appendix. 

OT and Physical therapy twice a week 

OT and Physical therapy twice a week 

We get moved to a new room on the 10th floor 

We get moved to a new room on the 10th floor 

You have to sleep with arm restrictors to not rip out your PIC line in your arm and to not scratch yourself and then the booties to keep your feet from dropping. 

You have to sleep with arm restrictors to not rip out your PIC line in your arm and to not scratch yourself and then the booties to keep your feet from dropping. 

fold out couch bed was very comfy compared to the floor.

fold out couch bed was very comfy compared to the floor.

Finally got to see outside. 

Finally got to see outside. 

Your hair started falling out

Your hair started falling out

First time to wash your hair in a long time

First time to wash your hair in a long time

hair loss

hair loss

trying to eat with daddy's help

trying to eat with daddy's help

Grammy stayed with you and Mommy and Daddy went on a date for their Anniversary.

Grammy stayed with you and Mommy and Daddy went on a date for their Anniversary.

Still not wanting to talk and PTSD is pretty bad around nursing/doctor staff. 

Still not wanting to talk and PTSD is pretty bad around nursing/doctor staff. 

George visits

George visits

First smiles since beginning of AUGUST

First smiles since beginning of AUGUST

family pic

family pic

How we slept for most nights taking shifts to care for you at nights when nurses were busy.

How we slept for most nights taking shifts to care for you at nights when nurses were busy.

Getting some sparkle back

Getting some sparkle back

Your board in the room.

Your board in the room.

Finally get to go home 9/6/13

Finally get to go home 9/6/13

At Grammy's with brother while our house was being painted inside.

At Grammy's with brother while our house was being painted inside.

Finally taking some food in on your own. A fry and cheese sauce was a big deal that day.

Finally taking some food in on your own. A fry and cheese sauce was a big deal that day.

At our house in your new room.

At our house in your new room.

Your first piece of art since you got sick.

Your first piece of art since you got sick.

Mommy shaves the remaining hair on her head

Mommy shaves the remaining hair on her head

We keep working on trying to get you back

We keep working on trying to get you back

Another surgery. PORT installation

Another surgery. PORT installation

You start talking and singing as if it was all a dream after a dose of ketamine. (yes that rhymed.)

You start talking and singing as if it was all a dream after a dose of ketamine. (yes that rhymed.)

And we go back to real world.

And we go back to real world.